Archive for the ‘Charity News’ Category

We’re looking for runners to take part in an adventure of a lifetime!

Wednesday, January 9th, 2019

Take part in the 2019 Uganda Marathon (26th May – 2nd June) with Uganda Cancer Trust UK

The Uganda Marathon is not just a race, but a 7 day immersive cultural adventure on the Equator. Described as “The best week of my life” by 1 out of 5 participants, it’s a unique event that brings people from around the world to rural Uganda to work with local projects, stage a sports day for local disadvantaged children, take part in a festival of Ugandan culture and at the end of it all, run a 10K, half or full marathon.

I am struggling to find the words to describe how amazing
the Uganda Marathon adventure was. Over the last week, I have met some wonderful people, volunteered at some incredible charity projects, had a life changing adventure and raced the race of a lifetime.

To find out more contact

Mulago palliative care nurse visits the UK for training

Sunday, October 7th, 2018

Liz Nabirye (palliative care nurse from Mulago Hospital, Kampala) visited the UK in October 2017 for a palliative care course on a bursary from St Christopher’s Hospice.

Whilst here she visited members of the Blackfriars Overseas Aid Trust. Their generous donation to Uganda Cancer Trust UK has enabled us to contribute to Liz’s salary. She also made a visit to the Maggie’s Centre at the Churchill hospital. Here she writes about her trip

My visit to the UK
The award of a bursary to attend an academy week at St Christopher’s was a dream come true for me. My visit to the UK will always remain such a memorable one. The international exposure really expanded and broadened my knowledge of end of life aspects with participants who were from different parts of the world.

I was inspired by the feedback I received on sharing my Ugandan experience, especially when many
said we were doing great work and wanted to hear more on how we were overcoming the challenges. My valuable visits to the Royal Marsden and St George’s hospital enabled me to see palliative care operating in settings with available resources.

Liz Nabirye with Uganda Cancer Trust UK trustees Elizabeth and Michael Minton

Liz Nabirye with Uganda Cancer Trust UK trustees Elizabeth and Michael Minton

I then came to Oxford and had an opportunity to meet members of the Blackfriars Overseas Aid Trust committee at Blackfriars church. They were very welcoming and were interested to hear about my experience of working in a resource limited setting and about my role in everyday work with cancer patients. I was able to explain to them that I was not only involved in providing clinical care, psychosocial and spiritual support but another important aspect of my work was the provision of information to address the concerns of cancer patients and their families. One of the other roles I shared was my involvement in training and mentoring link nurses and volunteers who bridge the gap and ensure continuity of care. I also expressed our need for training more volunteers as some of the existing volunteers have moved into full time employment.

A visit to Maggie’s Centre Oxford

Liz Nabriye visits Maggie's Oxford Centre

Liz Nabriye visits Maggie’s Oxford Centre

I visited Maggie’s Oxford at the Churchill Hospital. It is a beautiful building. This is a charity offering free practical, emotional and social support for people with cancer their families and friends. No referral or appointment is needed to visit the centre.

What was so appealing was that the centre feels like home and yet it is an in-between space. It is not a hospice or a clinic. It is a drop in centre and it is free. It offers information, advice on nutrition, support groups, relaxation classes and a psychologist and cancer support staff. They are there for anyone needing to talk about the most intractable subjects like fear of dying, the anxiety of cancer returning and other issues not easy to address in a hospital environment. I appreciated that people with cancer and their loved ones need time and space as part of the total package of care and this support beyond cancer treatment.

My visit to the Maggie’s centre was a practical exploration of the potential for the development of an information and support centre for our cancer patients and their families.

I appreciate everyone who made it possible for me to have such a wonderful and memorable experience in the UK.

Visit to Makerere Palliative Care Unit

Saturday, January 14th, 2017

In December 2016 two of our trustees, Liz and Michael Minton visited Uganda and the volunteer team at Makerere Palliative Care Unit. Here is a short report of their visit.

This was our 4th annual visit to meet the volunteers working with MPCU and led by Ivan and Liz Nabyre.

This year while Mulago hospital is being redeveloped the services have been relocated to three sites: Mulago, Kawempe,and Kiruddi hospitals. So the volunteers have been divided to produce three teams. We all met at Kiruddi for a morning reunion where we heard the experiences of the teams. There were, as ever, some complex patient problems where the volunteers had made valuable supportive relationships. It has been a difficult year for some because of the new arrangements and working with new staff at Kiruddi hospital which had only been opened this year.

The volunteers in good spirits.

The volunteers in good spirits.

We had the opportunity to join Liz Nabirye and see the new patient and family information material that the American Cancer Society have developed over the last year. Both Liz and Ivan have contributed to the project. This will be launched in February 2017.

Information Nurse Liz Nabirye holding some grasshoppers

Information Nurse Liz Nabirye holding some grasshoppers

A volunteer pig farm project to raise funds for their work has commenced with the building of the styes. 2017 will be a challenging year for the MPCU and volunteers with this new arrangement and the additional impact of there being no functioning radiotherapy service in Uganda (patients have to travel to Nairobi).

Recent visit to Mulago Hospital, Kampala

Wednesday, January 27th, 2016

Uganda Cancer Trust UK trustees, Liz and Michael Minton, visited Kampala in November 2015. Here is a short report from their trip.

We joined the volunteer team (of 12) for a week in Mulago hospital.

Volunteers with the Makere Palliative Care Unit, supported by Uganda Cancer Trust UK

Volunteers with the Makere Palliative Care Unit, supported by Uganda Cancer Trust UK

We were able to see first hand the valuable and challenging work they do in supporting cancer patients and their carers. The wards are full with little space between the beds.

Everyone needs a carer so usually a member of the family lives in the hospital with the patient (sleeping under the patient’s bed). The carer can be any member of the family, often female and even on occasion a child.

The volunteers visit the wards every afternoon enabling them to build up supportive relationships. They can also help with practical tasks such as collecting medications, accompanying patients to scans or radiotherapy treatments

As well as support to patients the volunteers work with family members. Our visit also included being part of their weekly morning meeting with the patients and carers in the radiotherapy hostel. One of the palliative care team, Liz Nabirye facilitates a valuable question and answer session in which patients and carers are able to address their concerns. They are joined by Ivan Onapito who is the team coordinator for volunteer and social support.

Uganda Cancer Trust UK trustees, Liz and Michael Minton, meet with Ivan from Makerere Palliative Care Unit, and Liz Nabyre - the information nurse supported by UCT.

Uganda Cancer Trust UK trustees, Liz and Michael Minton, meet with Ivan from Makerere Palliative Care Unit, and Liz Nabyire – an information nurse supported by UCT.

We undertook a two-day training programme with the volunteers who demonstrated their motivation and readiness to participate. This also provided an opportunity to explore and reflect on the challenges they experience.

Our visits with them to patients on the wards further illustrated the value of having trained and experienced volunteers as part of the palliative care team.

Currently the team are involved in the production of a video which explores cancer awareness, cancer treatments and palliative care for the general public.

Overall this was a rewarding visit for us. The volunteer team is a stable and experienced group who are making a significant contribution to the care and support of patients and their carers. This continues to be a worthwhile project for UCT to support.

Volunteers share their approach

Wednesday, January 27th, 2016

Volunteers at Makerere Palliative Care Unit were accepted to present their poster at a palliative care conference to show their unique strategy and approach to fit the local situation in Uganda.

Poster showing the strategy and approach of the MPCU volunteer team.

Poster showing the strategy and approach of the MPCU volunteer team.

You can also view the Volunteer Motivation Poster as a PDF.